Monday, July 28, 2008

The post I didn't think I'd write

When I was 13, most girls had gotten their period. I hadn't and when I finally did, it disappeared for months, and then came back for weeks. My breasts weren't developing like the other girls, and any breasts I did have were because I was overweight. I noticed extra body hair but thinning hair on my head and carried most of my weight around my mid-section. Puberty - the time I was supposed to be "becoming a woman" - made me feel like the opposite.

Eventually, my mother took me to a gynecologist who then referred me to an endocrinologist. After tests which included bloodwork and ultrasounds, it was confirmed that I had Poly-Cystic Ovarian Syndrome/Disease (PCOS). Tiny cysts had formed on my ovaries, throwing off the hormones in my body, creating an overabundance of testosterone and a deficit of estrogen. This disease can also cause the body to become insulin resistant, which is why most people are characterized by carrying the weight in the mid-section and some develop Type 2 diabetes. For more info, please click the link.

And what's worse, I had developed it at a critical time in my development. This means that I'd never grow breasts right for my body size. I have hypoplastic breasts. By definition, this means that much of my mammary tissue was never developed. I'd struggle with weight and body image issues for the rest of my life. I was put on birth control at age 14 to regulate my hormones and periods - the only treatment for this disease.

At that first doctor's appointment, the endocrinologist laid something on me that was heavy for any adolescent - I may have a hard time having kids, if I could even get pregnant on my own. My mind couldn't grasp it and had no need to until I met Mike and we were getting married. I wondered how long we'd have to try before we went through IVF, or how many heartbreaks we'd suffer trying to start a family.

But right before our wedding, I had hit my lowest weight, was in great shape, and was on Metformin - a drug that helped with the insulin resistance and helped lower testosterone levels. In addition to my birth control, I was fairly "normal." We decided to go off birth control after our wedding to give ourselves the time I was sure it would take us to get pregnant.

I got pregnant on our honeymoon.

I was determined to nurse my daughter. I took breastfeeding classes and when she came early and wouldn't latch, I hired lactation consultants, pumped round the clock, and took every herbal supplement under the sun to get my supply up. I smelled like maple syrup from the fenugreek and like licorice from the fennel. I never got more than 2 ounces at each pump and without her latching, I never got more. After a few weeks, we went to formula full-time because I was entering a dark place being attached to a milking machine for what seemed like every waking moment. Our daughter has turned out exceptionally bright, healthy, and beautiful.

We decided we wanted another baby and would start trying when our daughter was 18 months old. I knew that we would not have the same luck the second time, though I was back on Metformin, had gotten myself back in shape, and had just lost all the weight. I stopped birth control and we started "trying."

I was pregnant two weeks later.

I knew I was going to try and nurse again despite my "failure" the first time. When my son was born almost three weeks ago, he latched onto my breast within minutes of being born. I have a photo of this and it is one of my most precious pictures - one I don't show people but one that makes me swell with love and pride at something so simple, so innocent - a mother giving life and then food to her baby. Life in its most simplest form.

Within days, it was evident that even though my milk came in, it was not enough for him. We had decided from the beginning that we wanted to supplement anyway, for a variety of reasons and thankfully, he has no problem going from breast to bottle.

In those first few days, he was attached to me all day and all night because I know the law of supply and demand. The more he sucks and drains the breast, the more milk I'd make. And still, after most feedings, unless it was more than 5 hours, he'd cry for more food. And when I'd try and pump if I had to go out, I'd only get three ounces, which was enough for one feeding, but it was over the time of two. So he was needing double what I was making.

Still, I was okay with this. He was getting around 10-12 ounces of breastmilk a day and the rest was supplemented with formula. I know that some breastmilk is better than no breastmilk, though I have no ill judgment against those mothers who solely formula feed, and I was happy that he was even getting some.

And then I found that lump.

I had to have my nipple sliced into and was not allowed to nurse or pump on that side until it healed. With an already low supply, by the time I could nurse and pump in three days, my supply was almost gone.

I was determined to get it back up.

I'm on day three of trying to reestablish my supply, however little it was to begin with. I again smell like maple syrup and licorice. I drove 40 miles to Whole Foods today to get Goat's Rue - a natural galactagogue and an herbal equivalent to Metformin. I also pump, but this time my baby latches, which is much different than being in a room attached to a milking machine. I have special time with him, he instantly calms down if upset and he is a much better pump than my Medela.

After three days, my supply is almost back to where it was. I know now that because of my hypoplastic breasts and my PCOS, I would never be able to nurse any child exclusively. I have to learn to accept this.

Still, it's a loss to me; it's my body betraying me yet again. It's something beyond my control and yet I still feel like I'm failing.

I'm angry at my breasts. I'm angry at my ovaries. I'm angry at my body.

They're depriving me of an experience I so desperately wanted. They're depriving my son of his mother's milk.

Today while lamenting in tears to my husband these very thoughts, he told me "Your body hasn't failed you. It has given us two beautiful healthy babies."

Indeed it has.

Photobucket

32 comments:

Shelly Overlook said...

A marvelous story I'm so glad you felt able to share. I believe your husband is right - your body hasn't betrayed you at all. The experiences you've had with your children may not have been the ones you envisioned, but as their mother you have a special bond no one else can ever challenge.

Anglophile Football Fanatic said...

Mike's totally right. And, I am a bit shocked at the doctor saying the pill was good for controlling the disease, because mine seems to be of the opposite opinion - that it's glucophage & exercise. You know. Your body did not fail. Think of all the other PCOS sufferers who just hunger to have the baby. Desperate for the baby. I'm on the glucophage now, it's kicking my ass, but I'm fighting back at the dreaded testosterone.

beach mama said...

*Standing Ovation*
That was so into your soul and I am sure so hard for you to write about. Thank you for sharing that with us.

And you have such a smart and caring husband. He is absolutely right. Your body did NOT fail. You were able to have 2 beautiful, healthy babies and unfortunately many women who deserve and want babies can not.

You can never totally plan life. You have to go with the flow or you will be disappointed. <-- I totally live by that. I have no clue if I heard it somewhere or if I made it up...but I live it.

Sunshine said...

This is why I get a little pissed at some of the breastfeeding moms that look down on those who aren't. Because it isn't always the obvious reason the "didn't want to breastfeed" option. Sometimes, it is medically impossible.

I nursed all four of mine and it was mostly wonderful. But I also had a friend who desperately wanted to and couldn't...inverted nipples.

Point is, you did everything you could as a mom and sometimes things don't go according to plan. Your kids may not fully appreciate the hell you've put your body thru, but you know you're doing your best.

Rock it, sister!

Welcome to our World said...

Thank you for sharing this and your husband is absolutely correct - you have two beautiful and healthy babies no matter what that is awesome and special!

Steph said...

Im glad you wrote this! I totally agree with Mike. You are doing everything you can and you are an amazing mother!

charlotte said...

Our hormones play such a number on our emotions after birth. With me it was the inability to have either of my children naturally as well as being able to breastfeed.

Try to let go of these feelings of inadequacy and celebrate the two precious gifts you've been blessed with. All this in spite of your body.

From: Thelifeilove

Pgoodness said...

I think you're doing fantastic! YOU are doing everything you can, and your little one is not suffering AT ALL - he is thriving!! Even if he didn't get another single drop of breast milk, you are in no way a failure.

Morgan said...

I have tears in my eyes hon. Mike is so right, you have two very beautiful, healthy children.

Kimmber said...

AA, thank you sooo much for sharing your story. For me to minimize your feelings with little platitudes would be insulting.

Mike is right. You are an amazing mom and it pours out through every word you post. You and your body are not failures. You are the epitome of what it IS to be a good mom.

CassJustCurious said...

I just have a lot of love for you and I applaud you for sharing. I'm sure you're story will help many many people- in addition I should warn you that I will be squeezing you extra hard when we finally meet.

Alison said...

My heart goes out to you, as I felt like I failed at breastfeeding my daughter. When my son was born, I was hell-bent on breastfeeding him, and I did it despite going back to work 6 weeks after he was born and working three jobs. I got really ill about 11 months after he was born, but that's another story.

I don't have PCOS, but I do understand your struggle, and I admire you for working to get your milk supply up after your procedure. Try not to be angry at your body; it is doing what it can to nourish the baby it brought to life (as it did with your daughter). I know it's hard to accept, but some is better than none.

Gentle hugs.

Kellie said...

That picture says it all.

I already told you my thoughts on this.

I'm extremely proud of you for writing this. I'm extremely proud of you for NOT having the mindset of "Oh, well....I had a tough time trying to nurse Charlotte, so I won't even try with Sawyer" and for trying (and doing) it with him.

We all have something that isn't what we hoped for concerning our kids. Anyone who says they don't is not telling the truth. But, at the end of the night, it doesn't matter if the baby is formula fed or all boob. What matters is he's fed, he's healthy, he's HERE and? He's loved.

:)

CMB said...

Your husband is a beautiful man. He is totally right. You have not failed in anyway...two beautiful children and 1 fabulous husband=1 lucky, gorgeous you.

melissa said...

that was a wonderful story!!! and your husband is right...just look at those babies!!

catnip said...

I'm in awe. At the astonishing effort to breastfeed as much as you can because it's what you want to do. At your courage in writing this. At the fact you've been able to get pregnant at all, much less twice, yet have PCOS. Awe, honey.

MT aka hellokittiemama said...

Just keep doing the great job that you are doing. The rest is just details.

Hugs,
MT

noble pig said...

What a great story. You should not feel guilty but be proud. You have done an amazing job and are so lucky to have what you do.

Thanks for posting this!

Multi-tasking Mommy said...

And your hubby couldn't have said it any better!

I'm speechless really! Thanks so much for sharing your inner most thoughts. It must feel good to talk about it!

You really give everything in life "it all"--I can tell. Your children are two very lucky ones! Your hubby too :)

Kristin.... said...

Thank you for sharing, even though I'm sure it was extremely difficult to write. You have a wonderful husband and your kids are doing great. Just keep taking it a day at a time.

Sending you hugs.

SciFi Dad said...

I'm proud of you for sharing this.

(As an aside, have you considered Yak's Rue? It's like Goat's Rue, just a little different.)

Robyn said...

I'm so glad you shared your story. I too, have felt that way, but it's hard to TRULY believe that your body has failed you when it gave you such precious children.

Sawyer is getting everything he needs and Charlotte is growing up perfectly. Don't be so hard on yourself -- you're the perfect mother for your babies.

Madame Queen said...

Thank you for sharing your struggles with us. I know it's frustrating when your body doesn't do what you want it to, but I think Mike's right -- you do have two beautiful children and even though you didn't breastfeed Charlotte, you are breastfeeding Sawyer, even if it's not as much as you'd like. Nobody can ever say you didn't try your damndest to give them the best.

ccr in MA said...

What a fantastic photo! I think it's great that you've made some sort of peace with what your body can and can't do. Having the children at all is amazing, really. It's perfectly natural to mourn what isn't, but it's also good to try to focus on what is. Good luck.

3XMom said...

wow. amazing post. you are so strong - you can do anything!

Rachel said...

I love that picture, what a precious moment.

Wow. What an amazing story. Thank you so much for sharing this. You are so strong. I can't imagine the frustration this causes you but every memory every moment is precious between you and your children, whether it's how you envisioned it or not.
God Bless you and your precious gifts honey. You are one of the lucky ones.

That Smith Girl said...

Oh Hun, I am so sorry. Your husband is right, your body isn't failing you at all. It is NOT your fault. Big Hugs to you. You are taking care of that little man of yours & that is the most important thing!

Ali said...

good for you for trying!!

but i've got to say...it doesn't make you any less of a mother if you don't nurse your child.

and don't let any breastfeeding nazis try to tell you any different. you kids will be amazing, nursed or not.

hugs.

Astarte said...

I"m so glad you were able to share your story!!!! And I hope you feel better, and empowered, from doing it.

I have cystic ovaries, as well, and it was blind luck that we got pregnant the two times that we did. I, too, had low supplies of breast milk. I'm so glad that you have been able to overcome all this!!! Good for you! I know you're mad at your body, and I was too, but when the kids get older you won't be as upset by it, I promise.

Catwoman said...

I think this is one of the best posts you've ever written. Is it horrible for me to say that? But I don't think you've written a more emotionally raw post and I just want to reach across my screen and hug you.

You're doing better than many moms out there. Even if Sawyer's only gotten two ounces a feeding for the past three weeks, well, girl, that's way more than many babies get.

Mike's totally right, your body didn't let you down. I think when we become moms, we have to learn to let go of that ideal of the perfection of motherhood. You're doing so great, and really, no guilt needed.

bacioni said...

I also want to thank you for being open and honest.

I know a woman who was diagnosed with PCOS sometime in her late teens. Because of this and that (suicide attempts, foster homes, raging alcoholic parents, you know, the minor stuff) she has NEVER been treated.

She has suffered all these years, needlessly hating her body and others for judging her (she has a mustache/beard that must be shaved daily, very masculine in appearance, etc.) just because she was told by some uncaring doctor that he couldn't help her. The part that makes me mad is that she Believed that ONE doctor.

So now she's in her mid-40's, post-hysterectomy (not able to have kids anyway, no how, no way), multiple heart attacks and uncontrolled diabetes.

Be happy for your life and your babies, for doctors that can and do help, for a husband who loves you and wants you to be happy. You are beautiful just the way you are.

chefmom said...

I was in tears when I read this the first time, and couldn't comment. I am SO glad you shared this. My husband and I went through alot...losses, struggles, and jobs interfering with nursing. When I went back to work I was full a time chef. My daughter wouldn't take the bottle, and I had to sneak out of the kitchen durin dinner service to feed her in the car. My husband would drive 1/2 to bring her to me. I stuggled to nurse with my son. My supply was very low. Ultimately, it worked out.
You are a strong wonderful woman, and I am so happy for you and your body, that you overcame alot.